Chromosome Issue Parents

** If you comment please refrain from using the "R" word or any derogatory phrase.

Developmentally Delayed= DD
Trisomy= T
Down Syndrome= DS

A human cell has 46 chromosomes, 23 from each parent. When a chromosome has triple copies it is called Trisomy.

Down Syndrome has 3 copies in the 21st chromosome. Edwards Syndrome has triple copies in chromosome 18 and Patau Syndrome has triple copies in the 13th. I used T21, T18 and T13 as an example, there is several other disabilities caused by certain chromosomes being tripled. Or when an error occurs during conception and development.

*The degree of disability depends on how many cells is affected.

Some with developmental delays can learn to live independently, work, and drive , while others require 24/7 supervision.

It really depends on the child and intervention given early on.

Early intervention in education and diet can promote independence later on.

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Years ago I could never understand why one of my friends would get upset when of my neighbors kids was picked up by a schoolbus. The bus had the school's name on the side. It said...

_________ county board of MR DD

She felt the phrase MR DD labeled the kids and adults riding in the bus.
And to make matters worse the bus took the kids to a school that was for kids with DD and MR.

My friend lived in a neighboring state and special needs kids rode a regular bus and attended school with everyone else. Her daughter's disabilities were the result of a birth injury that left her severely disabled.

One thing I noticed with my friend and in several blogs I follow is better nutrition plays a big part in everyday life especially with chromosome issues. A better diet sometimes eliminates some medications, improves behavior and the overall quality of life for the child or adult.

I've read a lot of blogs written by remarkable mothers and fathers. Even though they have good relationships with Drs and other professionals, they are the child's first line of support in all aspects of life. From dietary needs, therapy, exercise and medical, the parents push. They don't focus on what their children can't do but encourage growth.

Ummm just another random blog